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Latest News
Dr.Padela recently got published in the Chest. The manuscript uses a clinical case to work through Muslim controversies over brain death and withdrawing life support Here is the link
The recording for our Live Webinar on "Advancing equity for Muslim physicians in the healthcare workforce" and the policy report that stems from our research is available now at : click here
initiativemedicine

Engaging Muslim Americans for Research on Community Health [E-MARCH]

Project Overview

Patients, caretakers, and other healthcare stakeholders face a number of challenges when it comes to figuring out what the right decision is for them in a healthcare setting. While health and healthcare researchers have made incredible progress in improving health outcomes, the current research methodology doesn’t always provide patients with the information they need to make an informed health decision. Patient-centered outcomes research (PCOR) is designed to help close that gap.
The Initiative on Islam and Medicine at the University of Chicago, UMMA Community Clinic, Whitestone Foundation, and Worry Free Community collaborated to develop a cohort of Muslim American community leaders. This cohort will leave E-MARCH better prepared to perform religiously and culturally relevant patient-centered outcomes research.

Mosque-Based PCOR Toolkit now available!

Interested in conducting mosque-based research?

The growing complexity of the American healthcare system and continued existence of health and healthcare inequities has spurred leading institutes and funders to develop novel methods and enhanced strategies by which to conduct, implement, and disseminate health outcomes research. Central to these efforts has been the focus on bringing value to patients by measuring outcomes of import to them, and on partnering with stakeholders across multiple sectors including the healthcare industry, community-based organizations, policy makers, and the academy so that health research and programming is better situated to the broader contexts of healthcare delivery within the US. This toolkit leverages these resources in bringing PCORI methods and tools to bear upon Muslim American community health through the venue of mosque communities.

E-MARCH Goals

What is Patient Centered Outcomes Research (PCOR)?

E-MARCH aimed to empower the Muslim American community by targeting the following issues:

  • Health outcomes are largely understudied in the Muslim American community

  • There are few opportunities for community leaders to develop the tools needed for community relevant PCOR

  • The mosque-community structure is an under-utilized setting for health research and intervention

  • There are few programs or resources tailored to the religious and cultural needs of the Muslim American community

PCOR is research that focuses on providing patients and caretakers with access to information that allows them to make informed healthcare decisions by studying the outcomes that patients want to know about. In doing so, PCOR creates an environment in which patient voices are heard in assessing the value of healthcare options. 

How to Conduct Patient Centered Muslim Health Research?

Check out this video of a recording from our E-MARCH cohort webinars focused on addressing Muslim Health in research.

EMARCH Project Updates

Advancing Muslim American Health Priorities Conference

A-MAP is the culmination E-MARCH through which a cohort of religious leaders, community health and social service workers, researchers, physicians, and patients from across the United States identified key community health research priorities for Muslim Americans. This conference provided a venue to examine these priorities by bringing together diverse stakeholders to discuss mosque-based, patient-centered approaches to addressing the religious dimensions of mental, reproductive, and sexual health disparities.

Public Pieces

Whitepaper

The growing complexity of the American healthcare system and continued existence of health and healthcare inequities has spurred leading institutes and funders to develop novel methods and enhanced strategies by which to conduct, implement, and disseminate health outcomes research. Central to these efforts has been the focus on bringing value to patients by measuring outcomes of import to them, and on partnering with stakeholders across multiple sectors including the healthcare industry, community-based organizations, policy makers, and the academy so that health research and programming is better situated to the broader contexts of healthcare delivery within the US. This toolkit leverages these resources in bringing PCORI methods and tools to bear upon Muslim American community health through the venue of mosque communities.

Poster

Presentations

Project Outputs

Since August 2018, the E-MARCH cohort has diligently worked to develop the knowledge, skills, and networks required to effectively engage in Muslim community-relevant patient-centered outcomes research. Through engagement in a learning institute, participation in webinars and group discussions, and the development of their leadership projects, the group has outlined the top Muslim health issues that are amenable to patient-centered outcomes research.

Gallery

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Mufti Nazim Khutbah

Padela Khutbah

Shkifah Khutbah

Intervention Study

Qualitative Study and Interviews

Fifty Muslim multiethnicity women (40 years old and above) were interviewed (6 focused group) and 19 in individual interviews. We found religious beliefs did informed mammography intention, which includes (1) the perceived religious duty to care for one’s health, (2) religious practices as methods of disease prevention, (3) fatalistic notions about health, and (4) comfort with gender concordant health care.

Quantitative Study and survey

240, 40 years of age or older, were surveyed (72 respondents were Arab, 71 South Asian, 59 African American, and 38 from another ethnicity). We found that positive religious coping and perceived religious discrimination in health settings significantly (negatively) affected mammogram adherence among Muslim women in Chicago.

American Cancer Society mammogram recommendations

Mammogram recommendation for women at average risk or breast cancer

  • Women between 40 and 44 have a choice to have a mammography every year.
  • Women 45 to 54 should get mammograms every year.
  • Women 55 and older can switch to a mammogram every other year, or they can choose to continue yearly mammograms.

3R model

Reframing “switch train tracks”
  • Keep the barriers belief intact but change the way one thinks about it so it is consonant with the desired health behavior
  • Normalizes the barrier belief
Reprioritize: “show them a better train”
  • Introduce a new belief and create higher valence for it than the barrier belief
  • Normalization of the barrier belief is optional
Reform: “breakdown the train carriage”
  • Negate the barrier belief by demonstrating its faults by appealing to authority structures

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